Snapshot
COUCH Health were commissioned by a leading biotech company to co‑create patient‑facing study materials for an upcoming phase 2/3 clinical study with people living with lung cancer within Black and African American communities in the US.
The client wanted to understand the perspectives of people with lung cancer who are currently underserved in clinical research to ensure their patient-facing study materials were appropriate and inclusive.
Problem
In the US, Black and African American people have been historically underrepresented in clinical research, despite being disproportionately affected by diseases such as cancer.
Lung cancer is the leading cause of cancer mortality in the US, accounting for 1 in 5 of all cancer deaths.
Black men are 12% more likely to develop lung cancer than White men.
While lung cancer rates are lower in Black and White women than in men, the gender gap is narrowing due to increasing incidence rates among women.
Strategy
COUCH Health proposed 2 strategies for gathering insights and feedback from individuals with lung cancer from black and African American communities in the US:
- Co-creation workshops
- Podcast interviews
Purpose
- To understand lived experiences and views on clinical research
- To gather feedback on patient-facing study materials for an upcoming lung cancer clinical study
- To discuss effective strategies for sharing information about clinical studies to enhance diverse representation in lung cancer research among black and African American populations
